AB185-ASA3,3,62 69.03 (12) Accept fetal death reports under s. 69.18 (1) (e). The state registrar
3may record the information on the reports for use in medical research , including
4research conducted under s. 253.12 (5) (b),
and may use the information to compile
5statistics. After recording the information on a fetal death report, the state registrar
6shall destroy the report.
AB185-ASA3, s. 2 7Section 2. 69.20 (2) (a) (intro.) of the statutes is amended to read:
AB185-ASA3,3,138 69.20 (2) (a) (intro.) Except as provided under sub. (3), information Information
9in the part of a certificate of birth or divorce or annulment or a marriage document
10that is designated on the form as being collected for statistical or medical and
11statistical use only and information in the part of a death certificate that is
12designated on the form as being collected as statistical-use-only information under
13s. 69.18 (1m) (c) may not be disclosed to any person except the following:
AB185-ASA3, s. 3 14Section 3. 69.20 (2) (a) 3. of the statutes is created to read:
AB185-ASA3,3,1515 69.20 (2) (a) 3. As provided under sub. (3).
AB185-ASA3, s. 4 16Section 4. 69.20 (3) (b) 3. of the statutes is amended to read:
AB185-ASA3,4,817 69.20 (3) (b) 3. The information is from the vital record of a registrant who is
18a resident of another state or who was born in another state and is transmitted to

1the office responsible for keeping the vital statistics in such state under an interstate
2cooperation agreement which requires that the information be used for statistical
3and administrative purposes only and which provides for the retention and
4disposition of such copies. If under such an agreement the state registrar receives
5information from an office responsible for keeping the vital statistics in another
6state, the state registrar may not use the information for any purpose except for the
7compilation of statistics and, if agreed to by the other state, in meeting requirements
8for reporting under s. 253.12 (2) (a) 3
.
AB185-ASA3, s. 5 9Section 5. 69.20 (3) (c) of the statutes is amended to read:
AB185-ASA3,4,1810 69.20 (3) (c) Notwithstanding sub. (2), a A local registrar may disclose
11information on a birth certificate or issue a copy of the certificate to a local health
12department, as defined in s. 250.01 (4), for health or demographic research or a public
13health program if the local health department pays the copying costs and if the birth
14of the registrant occurred within the boundaries of the political subdivision served
15by the local health department or the registrant is a resident of the political
16subdivision. The local health department may not disclose any information from any
17copy which it receives under this paragraph to any person and shall destroy the copy
18no later than one year after receipt.
AB185-ASA3, s. 6 19Section 6. 69.20 (3) (d) of the statutes is amended to read:
AB185-ASA3,4,2420 69.20 (3) (d) Subject to par. (f), the state or a local registrar may disclose
21information from the vital record of a specified registrant, except information under
22sub. (2) (a),
to a federal agency, to any agency of the government of this state, or to
23any agency of a county, city, town, or village if the agency requests the information
24for use in the conduct of its official duties.
AB185-ASA3, s. 7 25Section 7. 253.12 (1) (a) (intro.) of the statutes is amended to read:
AB185-ASA3,5,4
1253.12 (1) (a) (intro.) "Birth defect" means any of the following conditions
2affecting a stillbirth or an infant or child that occurs prior to or at birth and that
3requires medical or surgical intervention or interferes with normal growth and
4development:
AB185-ASA3, s. 8 5Section 8. 253.12 (1) (a) 1. of the statutes is amended to read:
AB185-ASA3,5,76 253.12 (1) (a) 1. A structural malformation, deformation, disruption, or
7dysplasia.
AB185-ASA3, s. 9 8Section 9. 253.12 (1) (b) of the statutes is renumbered 253.12 (1) (cm) and
9amended to read:
AB185-ASA3,5,1310 253.12 (1) (cm) "Pediatric specialty clinic" means a clinic that is located in a
11hospital or is a freestanding clinic,
the primary purpose of which is to provide
12pediatric specialty diagnostic, counseling and medical management services to
13persons with birth defects by a physician subspecialist.
AB185-ASA3, s. 10 14Section 10. 253.12 (1) (e) of the statutes is created to read:
AB185-ASA3,5,1715 253.12 (1) (e) "Research" means a systematic study through scientific inquiry
16for the purpose of expanding a field of knowledge, including environmental or
17epidemiological research or special studies.
AB185-ASA3, s. 11 18Section 11. 253.12 (2) (a) (intro.) of the statutes is amended to read:
AB185-ASA3,5,2119 253.12 (2) (a) (intro.) Except as provided in par. (b), all of the following shall
20report in the manner prescribed by the department under sub. (3) (a) 3. a birth defect
21in a stillbirth or an infant or child:
AB185-ASA3, s. 12 22Section 12. 253.12 (2) (a) 3. of the statutes is created to read:
AB185-ASA3,6,523 253.12 (2) (a) 3. The division of the department that deals with vital statistics,
24with respect to the information received under s. 69.20 (3) (b) 3. or available under
25s. 69.20 (3) (d). If a report is made under this subdivision and the report is not

1confirmed by a report made by another reporting entity, the department shall remove
2from the registry under sub. (3) all information that would identify the stillbirth,
3infant, or child before releasing the information to another party under sub. (5) (b),
4other than the address of the infant or child or place of delivery of the stillbirth that
5the department has encoded to refer to the same geographical location.
AB185-ASA3, s. 13 6Section 13. 253.12 (2) (a) 4. of the statutes is created to read:
AB185-ASA3,6,87 253.12 (2) (a) 4. The entity under contract under s. 153.05 (2m) (a), with respect
8to public use data files under s. 153.46 (1) (b).
AB185-ASA3, s. 14 9Section 14. 253.12 (2) (am) of the statutes is amended to read:
AB185-ASA3,6,1210 253.12 (2) (am) Any hospital in which a birth defect is diagnosed in a stillbirth
11or
an infant or child or treatment is provided to the infant or child may report the
12birth defect in the manner prescribed by the department under sub. (3) (a) 3.
AB185-ASA3, s. 15 13Section 15. 253.12 (2) (b) of the statutes is amended to read:
AB185-ASA3,6,1714 253.12 (2) (b) No person specified under par. (a) need report under par. (a) if
15that person knows that another person specified under par. (a) or (am) has already
16reported to the department the required information with respect to the same birth
17defect of the same stillbirth or infant or child.
AB185-ASA3, s. 16 18Section 16. 253.12 (2) (d) of the statutes is amended to read:
AB185-ASA3,6,2219 253.12 (2) (d) The department may not require a person specified under par.
20(a) 1. or, 2., or 3. to report the name of an infant or child for whom a report is made
21under par. (a) if the parent or guardian of the infant or child refuses to consent in
22writing to the release of the name or address of the infant or child.
AB185-ASA3, s. 17 23Section 17. 253.12 (2) (e) of the statutes is amended to read:
AB185-ASA3,7,3
1253.12 (2) (e) If the address of an infant or child or the place of delivery of a
2stillbirth
for whom a report is made under par. (a) is included in the report, the
3department shall encode the address to refer to the same geographical location.
AB185-ASA3, s. 18 4Section 18. 253.12 (3) (a) 1. (intro.) of the statutes is amended to read:
AB185-ASA3,7,95 253.12 (3) (a) 1. (intro.) Establish and maintain an up-to-date registry that
6documents the diagnosis in this state of any stillbirth or infant or child who has a
7birth defect, regardless of the residence of the infant or child or place of delivery of
8the stillbirth
. The department shall include in the registry information that will
9facilitate all of the following:
AB185-ASA3, s. 19 10Section 19. 253.12 (3) (c) of the statutes is amended to read:
AB185-ASA3,7,1311 253.12 (3) (c) The department shall, not more than 10 years from the date of
12receipt of a report under sub. (2), delete from any file of the department the name of
13a stillbirth or an infant or child that is contained in the report.
AB185-ASA3, s. 20 14Section 20. 253.12 (4) (a) of the statutes is amended to read:
AB185-ASA3,7,2315 253.12 (4) (a) Make recommendations to the department regarding the
16establishment of a registry that documents the diagnosis in the state of a stillbirth
17or
an infant or child who has a birth defect, as required under sub. (3) (a) 1. and
18regarding the rules that the department is required to promulgate under sub. (3) (a)
192. and 3. on the birth defects to be reported under sub. (2) and on the general content
20and format of the report under sub. (2) and procedures for submitting the report. The
21council shall also make recommendations regarding the content of a report that,
22because of the application of sub. (2) (d), does not contain the name of the subject of
23the report.
AB185-ASA3, s. 21 24Section 21. 253.12 (5) (a) 1. of the statutes is amended to read:
AB185-ASA3,8,2
1253.12 (5) (a) 1. The parent or guardian of a stillbirth or an infant or child for
2whom a report is made under sub. (2).
AB185-ASA3, s. 22 3Section 22. 253.12 (5) (a) 4. of the statutes is amended to read:
AB185-ASA3,8,144 253.12 (5) (a) 4. A representative of a federal or state agency upon written
5request and to the extent that the information is necessary to perform a legally
6authorized function of that agency, including investigation of causes, mortality,
7methods of prevention and early intervention, treatment or care of birth defects,
8associated diseases or disabilities. The information may not include the name or
9address of an infant or child or the place of delivery of a stillbirth with a condition
10reported under sub. (2). The department shall notify the parent or guardian of a
11stillbirth or
an infant or child about whom information is released under this
12subdivision, of the release. The representative of the federal or state agency may
13disclose information received under this paragraph only as necessary to perform the
14legally authorized function of that agency for which the information was requested.
AB185-ASA3, s. 23 15Section 23. 253.12 (5) (b) 5m. of the statutes is created to read:
AB185-ASA3,8,1816 253.12 (5) (b) 5m. The person agrees in writing that the information provided
17will not be used by an insurer, as defined in s. 600.03 (27), to limit or deny health care
18coverage or a policy of life insurance to an individual.
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